Death Work : End of Life Companion
In Feb 2021 the love of my life was given weeks to months to live. From a traumatic brain injury his Adrenoleukodystrophy (ALD) was progressing. His brain was swelling + would continue to swell. This is what the neurologists believe will cause his life to end. At 33, we are both too young. He, I felt went right into acceptance. I went into denial. But I couldn’t stay there. I knew I needed to do something to create something around this progressing diagnosis. He chose me to journey with him down this last journey.
I decided to take the next step and learn as much as I can to create something special for him. I finished my End of Life Doula Training in 2021. I know I can support my love in crossing into the next adventure. I envision ceremony. I see support. I feel capable.
And this is something I wish to help + offer to others later. Caretaking is exhausting. Putting someone else's needs in front of your own is hard. We are not taught to honor or learn about death. We learn that death is something to be feared, taboo. We don’t talk about death. We get uncomfortable. My hope is to change this. To encourage a new vision around death. It can really be a beautiful + magical experience. It is something mysterious + sad || beautiful + bright. But knowing that you are safe. That your loved is safe + cared for + supported. These. we. can. control.
I will journey with this with my beloved first + then we will see what happens… we will see what this transitions into….. stay tuned…